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ISD Scotland better information, better decisions, better health

Scottish Cancer Registry

Our Aims

NHS National Services Scotland ISD Scotland & NHS National Services Scotland

Our Aims

Scottish Cancer Registry is a full member of the United Kingdom & Ireland Association of Cancer Registries (UKICR) who work together to ensure both National and International standards for cancer registration are maintained. More detail on the role cancer registries have in improving services is described on the website of the UK Association of Cancer Registries 

Scottish Cancer Registry provides high quality and timely information about cancer incidence, survival and mortality. The registry also makes a significant contribution to the improvement of cancer services. 

Our Aims

  • Collect, validate, analyse and store accurate, timely and comprehensive data on cancer.
  • Provide regular proactive production of information on cancer incidence, survival and mortality along with interpretation and contextualisation of this data and analysis by;
    • Monitoring trends in cancer  incidence, prevalence and survival with time and among different areas and social groups.
    • Evaluating the effectiveness of cancer prevention and screening programmes.
    • Evaluating the quality and outcomes of cancer care, through the provision of comparative data about treatment patterns and outcomes.
    • Evaluating the effect of environmental and social factors on cancer risk and support other investigations into the causes of cancer, including respond to and advise on alleged community cancer clusters and or/environmental point sources and risks of cancer.
  • Provide appropriate information on cancer for ad hoc queries and be-spoke record level research data-requests including audits and surveys.
  • Provide data to be used to facilitate planning of cancer services for prevention, diagnosis, cure and care.
  • Support the work of cancer genetic counselling services for individuals and families who may be at a higher risk of developing cancer.
  • Contribute to national and international policies, publications and benchmarking cancer epidemiology studies such as the ‘Detect Cancer Early’ (DCE) Programme, UK National Cancer Intelligence Network (NCIN) publications, Cancer Incidence in Five Continents, EUROCARE (survival from cancer across Europe), EPIC (European Prospective Investigation into Cancer and Nutrition) CONCORD (Global surveillance of cancer survival), and work for cancer charities such as CRUK & Macmillan.
  • Uphold patient confidentiality.
  • Review activities and programmes of the Registry regularly to ensure the provision of high quality data on cancer is maintained.

 

© ISD Scotland 2010
Information Services Division,
NHS National Services Scotland,
Gyle Square,
1 South Gyle Crescent,
Edinburgh EH12 9EB,
Tel: 0131 275 7050
NSS.isdSHIS@nhs.net  
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