From 1st May 2015, arrangements for scrutiny of applications to use NHS originated data changed. Community Health Index Advisory Group (CHIAG), NHS National Services Scotland Privacy Advisory Committee (PAC), and National Caldicott Guardians application processes have been merged. A single application and scrutiny process now operates across Scotland by a newly formed Public Benefit and Privacy Panel for Health and Social Care.
For more information please visit www.informationgovernance.scot.nhs.uk.
The electronic Data Research and Innovation Service (eDRIS) provides a single point of contact to assist in the completion of applications to the Public Benefit and Privacy and assist researchers in study design, approvals and data access in a secure environment. eDRIS aims to make conducting research easier, more efficient and more convenient. eDRIS is part of Information Services Division (ISD) and supports the Farr Institute Scotland, Administrative Data Research Centre (ADRC) and Scottish Government Linkage Projects at No 9 Edinburgh Bioquarter, Little France Road, Edinburgh, EH16 4UX.
Whether you already have extensive knowledge of administrative datasets and approval processes or if you are working with these for the first time, eDRIS will support you. Our services can be tailored to meet your specific requirements. eDRIS will provide:
- A named Research Co-ordinator from start to finish
- Help with study design
- Expert advice on coding, terminology, meta data and study feasibility
- Assistance with obtaining the required permissions for access to data
- Agreed deliverables and timelines
- Liaisons with data suppliers to secure data
- Access to data within the NSS NSS National Safe Haven
- Analyses, interpretation and intelligence about data (where required)
eDRIS will provide you with a Research Coordinator who will be a single point of contact to support you throughout your study. Their role includes:
- Helping you to understand the eDRIS process.
- Offering guidance throughout your study.
- Providing an estimated charge for your study.
- Providing advice on available datasets and their content.
- Assisting in the completion of the required approvals.
- Advising on the requirements to become an Approved Researcher.
- Helping you to access the NSS National Safe Haven .
- Reviewing and advising on the disclosure control of final outputs.
We have also developed Frequently Asked Questions to help explain eDRIS processes.
Examples of collaborative work
- Novel cross-sectoral linkage of routine health and education data at all Scotland level: a national demonstration project. (Lancet, 382 (Sup 3). S10. ISSN 0140-6736 (doi:10.1016/S0140-6736(13)62435-6))
- Assessing the Quality of linking Education Data to the Community Health Index Number with limited personal identifiers. (Linking ScotXed Data.pdf)
- Deaths by suicide and their relationship with general and psychiatric hospital discharge: 30-year record linkage study (DOI: 10.1192/bjp.bp.112.122374 Published 1 April 2014 - http://bjp.rcpsych.org/content/204/4/267 )
- Risk of oesophageal cancer among patients previously hospitalised with eating disorder (http://www.sciencedirect.com/science/article/pii/S1877782115000454 )
For more information you can email eDRIS at NSS.eDRIS@nhs.net or telephone 0131 275 7333.