Note: This page used to be the home page for the Long Term Conditions Programme which is now part of the Health and Social Care Information Programme .

The following sections provide links to information sources containing statistics on the prevalence of Long Term Conditions (LTC), or to other LTC-related sites of potential interest.

 

Prevalence of Long Term Conditions

Long Term Conditions in Scotland Final Report

This report identifies and assesses the main data sources for measuring long term conditions, and uses these to provide estimates of prevalence for major LTCs within the Scottish population. The report also provides measures of multiple LTCs. A summary version of the report is also available: Long-Term Conditions in Scotland - Summary

 

ISD information on specific LTCs

Where possible the links are to ISD webpages, otherwise links are given to National Organisations.

Cancer - ISD programme

CHD - ISD programme

Stroke - ISD programme

Mental Health - ISD programme

Learning Disability - ISD webpage

 

Other sources of information about LTCs

ScotPHO - information and statistics provided by the Scottish Public Health Observatory on a wide range of public health topics, including disabilities in the Health, Well-Being and Disease  section.

Scottish Health Survey - provides a detailed picture of the health of the Scottish population in private households.  The most recent publication is for 2008. There is information on LTCs and mental health in Chapter 1 and on diabetes and cerebrovascular disease (CVD) in Chapter 8. More details on chronic obstructive pulmonary disease (COPD), ischaemic heart disease (IHD), CVD and angina are in supplementary excel tables .

Scottish Household Survey - provides information about the characteristics, attitudes and behaviour of Scottish households and individuals on a range of issues. The most recent publication is for 2007/8 and includes limiting longstanding illness (LLTI) in Chapter 10. More detailed data on LLTI and disabilities are found in the web tables .

Scotland and European Health for All Database - developed by ScotPHO by adding Scottish data to a download of the European HfA database. Contains data (incidence, prevalence, hospital discharge and mortality) on disabilities and some LTCs including diabetes, asthma, COPD, IHD, CVD, chronic liver disease and cancer

Alzheimer's Scotland have details of estimated numbers of persons with dementia by Council Area and prevalence by age (2010).

Diabetes in Scotland publish Annual Reports of which 2009 is the most recent. There are details of numbers on the diabetes register, including a breakdown by Loacal Authority, type, age and ethnicity.

 

Other useful information

SPARRA is a risk prediction tool which assists practitioners in identifying patients, often with LTCs, who may require additional care management or anticipatory care. 

The Long Term Conditions Collaborative (LTCC) supports NHS Boards and their partners to deliver improvements and change the way care is provided for people with long term conditions. 

The Long Term Conditions Alliance Scotland  (LTCAS) is an independent Scottish charity which works with the Scottish Government and voluntary organisations to influence policy and improve practice for people with long term conditions.

The Scottish Government's agenda for LTC patients is laid out in the Better Health, Better Care action plan and, more recently, Improving the Health and Wellbeing of People with Long Term Conditions in Scotland: A National Action Plan.